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Caffeine Discontinuation Survey 

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 Survey Comments

Please add any comments you may have regarding the management of this clinical situation. Are you aware of any data that supports your clinical practice for this scenario?
1. 3 days to allow the caffeine to fall to subtherapeutic level, then 5 days free (total 8 days)
2. It is rare that a 35 week baby has been without apneas for only one week in my experience. Most babies are not on caffeine for that long
3. NO data that I am aware of. We stop our caffeine long before the babies are ready to go home usually so this is not a problem. We feel that if an infant is still having significant episodes than he/she should not be going home anyway.
4. We rarely use home monitoring, do not follow caffeine levels, and do not discharge on caffeine.
5. We discontinued theophylline when the baby reach 33week PGA and very rarely we reintroduce this therapy, also if the baby was oxygen-dependent
6. When we discontinue the caffeine the time we use is 7 days for the caffeine to leave the infants system and then 5 days to observe for apnea or bradycardia If all goes well they are then discharged
7. We assume level is subtherapeutic in 3-5 days with an additional 5-7 day countdown.
8. No clear data available in the literature at this time. Most decision are opinion based.
9. In my opinion Apnea of prematurity shouldn't be called AOP beyond 34 weeks. if occurring one should rule out all other possibilities for Apnea. there is little evidence that apnea monitors save lives.
10. we generally do not use caffeine past 32 weeks unless baby is extremely small and not likely to go home in the next 2 weeks. We would not have treated a 34 weeker with caffeine, but rather would have used Theolair. (originally had to do with availability of caffeine for home) Theo keep about 5 days then discharge.
11. we check levels weekly and bolus based on levels. If a patient is on caffeine and has A/B's we check a level then bolus (before we get the level back).
12. Very rarely discharge infants on caffeine. Do not see many infants at 35+ weeks PCA who have apnea. But if so, I discontinue caffeine for 5 days and discharge if no apnea episode documented.
13. On the basis of no data except the 5-day halflife of Caffeine, I do not discontinue Caffeine within 2 weeks of expected discharge. I fear the return of threatening apnea at home where it cannot be effectively managed. If I do not have that much time to watch for the return of symptoms, I leave the child on the same dose at home, and discontinue it 2-3 months later--after 50 weeks PCA (and without true monitor alarms for at least 2 months if they are monitored). By this time, the dose is homeopathic for current weight, and one can stop with little worry of recurrent spells.
14. Also depends how significant the episodes are and if they are associated with feeds.
15. Spell free 8 days AND off caffeine for 5 days.
16. Not much supportive data. I like the article below, that outlines differences between hospitals in practice, but also suggests infants are mature around 35 weeks, for apnea. Eichenwald EC, Blackwell M, Lloyd JS, Tran T, Wilker RE, Richardson DK. Inter-neonatal intensive care unit variation in discharge timing: influence of apnea and feeding management. Pediatrics. 2001 Oct;108(4):928-33
17. We always discontinue caffeine before discharge and it requires a 7 day apnea free interval after cessation of caffeine to let the child go home.
18. I require a month free of significant events off caffeine to discontinue monitor, which works out to six weeks after med stopped as "Off caffeine" interpreted and none given for two weeks, so two weeks after caffeine stopped start counting. If never treated with caffeine will not monitor if low risk and no recorded events for two weeks. Our unit has a very high monitor rate but a very early average age at discharge. Cost of one month on home monitor equals cost of 12 hours in NICU
19. I wait those days based on the half life of Caffeine.
20. We are pretty sure ther are NO data, and we always have a long discussion with pareants about illness and recurrent apnea
21. We generally discontinue caffeine at ~34 wks of PMA and wait for about 1 wk off cafcit before d/c.
22. I am not aware of any supportive data
23. In Chile the National Guide of Neonatology suggests the following managing: "The treatment must extend up to a period of 7 days without apnea or in case of apneas persistent up to 34-36 weeks of postconceptional age. Period of observation post-suspension of the therapy of at least 5-7 days without apneas." José M. Novoa MD President Section of Neonatology. CHILEAN SOCIETY OF PEDIATRICS
24. approach recognized as consensus, non evidenced based, observational period for expectant resolution with maturation. My area of concern is the relationship between higher incidence of SIDS in prematures and apnea of prematurity. I suspect prematurity is underestimated in infant mortality statistics as the underlying causation, but I dont have data. Any evidenced role for pneumograms?
25. No.
26. Generally I stop caffeine at 1.8 kg. Most of my patients are still struggling with feeding, and as we are a breast feeding unit, I will be able to observe the baby for at least a week before the feeding if going well. I also generally ask for home apnoea monitors and parental training in BLS in all high risk infants.
27. In my country there is no caffeine in the medical market, so theophylline is the first drug for the treatment of apnea of prematurity. I placed theophyilline instead of caffeine and I answered the questions.
28. Thank you for this survey - it is incredibly difficult to determine the "right" thing to do. I am eager to learn other practices.
29. No data to support the practice. Baby not on Caffeine, we wait for 48 hours of "apnea free" interval before discharging, whether the baby goes home on a monitor or without the monitor.
30. no need to monitor levels
31. no
32. if caffeine is included in the discharge, then we do a 5 channel, 12h, pneumocardiogram 48h before discharge; if normal we discharge without a monitor.
33. We discontinue caffeine if the baby has been apnea free for 7 days. We monitor for at least 7 days after the caffeine has been discontinued. If the baby is on caffeine, and ready for discharge (and NOT apnea free for 7 days) we would give a prescription for caffeine good with one month supply and send home on a home apnea monitor.
34. We do car seat study: OXYCRG screen download for 90 min and if we find that the infant has desaturations below 80 or bradycardia or apnea associated with prolonged periodic breathing spells, then we send them on home apnea monitor considering them high risk for apnea events following URI/ smoke exposure/ LRTI etc. I do not think that it is proved by any study
35. I use Kattwinkle's data for an 8 day apnea free period before discharge. I discontinue the caffeine by 34 weeks so I have time to observe the baby before discharge.
36. I applaud the effort that went into this survey. No, I am not aware of any existence evidence supporting this clinical practice other than the half life of caffeine citrate. My second comment is to recommend you to launch another survey regarding practice of using (or futility of using) pulse oximeter in addition to the use of cardiorespiratory monitor in stable growing premature infants who are not on any supplemental oxygen. I discontinue caffeine 1-2 wk before anticipated date of discharge (generally beyond 33-34 wk) Personally, I discontinue pulse oximeter beyond 1500g or 32 wk in all infants who are not receiving supplemental oxygen and manifest only apnea or bradycardia. I have virtually never discharged any infant on caffeine after 35 wk PMA.
37. for this infant I would DC the caffeine and observe for 5-7 days discharging the infant without monitor
38. yes. One should use the caffeine level or Caffeine half life. If the infant is Apnea free for 7 days on Caffeine at 34-35 weeks GA d/c Caffeine and observe for 3 days. This is enough time for the long caffeine half life to reach sub therapeutic levels. If the infant is symptom free the infant can be d/c with out monitors. There is no level effect relationship with Caffeine and that is why a prolonged observation period is necessary.
39. Darnell et al Pediatrics (1997); 100:795 showed that (it in a cohort of 91 infants mean birth GA 28wk, mean BW 1162g) no apnea occurred *8days after an apnea-free interval unless there was a specific cause (e.g., sepsis). To my knowledge, this is the only quality data supporting the practice of a 7 day caffeine-free period prior to discharge.
40. We do not routinely discontinue caffeine prior to discharge. All of our pts on caffine go home with monitors.
41. There is no need to monitor caffeine levels. after loading and maintenance dosage unless the infant is symptomatic frequent A&B or tachycardia no levels are done dosage is rarely adjusted . So infant probably outgrows the dosage and by the time infant is closer to discharge or PMA 35 weeks levels are probably subtherapuetic . Another strategy is discontinue medications if A&B free for 7 days or more and infant * 32 to 33 weeks PMS so by the time discharge time infant's caffeine levels are subtherapeutic
42. I'm aware of caffeine discontinuation protocols, based on measuring levels. We have "no data" except for some facts: - We have been using caffeine exclusively since about 1990, and initially measured levels on therapy. We decided they were not useful because dosing adjustments were rarely needed, and also when we found that routine (unintended) 2-fold dosing was well tolerated. - The "7-day apnea free off caffeine, no levels" practice has been going on for over 15 years, and these babies are not coming back with apnea. If they did, we would hear about it, since we are the only game in town...
43. There are no good data on this subject in the literature.
44. I would have discontinued caffeine by ~34 - 34.5 weeks corrected gestational age. These babies may still have an occasional apnea, but not requiring ongoing caffeine Rx as they are in a monitored NICU environment. Once this baby meets other criteria for discharge (po feeding, maintaining temps, gaining wt), I would also want an apnea-free period of 5-7 days. Meeting all of these criteria may take longer than 5-7 days from the date of actually stopping caffeine.
45. I am not aware of any data supporting my practice. I try to discontinue caffeine at least a week before anticipated discharge (though it does not happen consistently as I am in a group practice and do not round on the same patients consistently). I only do it if the patient is apnea free or the episodes are infrequent - 1or2/24hr. If the infant continues with apneas no matter the frequency s/he goes home on a monitor. Threshold for sending home on a monitor is real low and probably a reflection of my insecurity in this climate of law suits rather than the real medical necessity.
46. We always discontinue caffeine around 34 weeks PMA. If apnea continues, we prescribe a home monitor. In my memory, we have never sent a baby home on caffeine.
47. This is a good question. We try not to send infants home on Cafcit. We are constantly trying to discontinue the cafcit sooner than later so we are able to observe the infants for an adequate period off cafcit. With a 3-4 day half life, we probably should watch them off cafcit for a couple of weeks (the more preemie, the longer the observation). However, many of our babies are found to be approaching discharge by all other criteria, but have only recently been taken off cafcit. We came up with a consensus opinion (no evidence) to observe these relatively low risk infants for one week. If they exhibit any respiratory events, they go home on a monitor. I still believe this is overkill, and our criteria for using the monitor is partly defensive medicine. The AAP's statement was somewhat helpful, but still doesn't do it medicolegally.
48. Published half-life data for caffeine of up to 100 hours.
49. We have no specific data to support. We actually do not always abtain a caffeine level. We will discontinue caffeine, wait 7 days. If no episodes, we will start a 5 day A & B free period before going home. We will hardly ever send home on a monitor.
50. There is no do data against my practice
51. Do not use caffeine that often. mostly use aminophylline
52. Unaware of any data.
53. Sorry, We do not use caffeine at all. We use aminophyllin instead, as it can be used both enterally and parenterally. So my answers are related to aminophyllin, if it helps you.
54. Community standard of care.
55. We cease caffeine generally at 34 weeks and therefore this situation does not arise
56. I discontinue caffeine at ~ 32 weeks
57. I do not have my teaching files with me while I am doing this at home - However, there was a study about 15 years ago on duration of significant apnea free days prior to discharge of premature infants. Their conculsion was 5 days.
58. no good data
59. No data but caffeine has a long half life. Since I have also done consulting pediatrics for years I have consulted on many infants admitted to pediatrics with ALTE who were sent home from other institutions right after caffeine was discontinued. We try to learn from the mistakes of others as well as our own.
60. Monitor for 10-12 days assuming half life of 7 days and 5 days off caffeine without event/s.
61. given wide therapeutic index we have found monitoring levels to be of little use
62. The half-life appears to be ~98[+32] or 130 hours. So by waiting 5-7 days (120-168 hours), the level should be 1/3 to 1/2 (at most) of the level when the drug is being given. Pediatrics. 1985 Nov;76(5):834-40. Maturational changes of caffeine concentrations and disposition in infancy during maintenance therapy for apnea of prematurity: influence of gestational age, hepatic disease, and breast-feeding. Le Guennec JC, Billon B, Pare C. Twenty-three premature infants receiving caffeine maintenance therapy were followed prospectively for several months. Three to nine determinations of caffeine half-life (peak and trough caffeine levels) were made in each baby. This first longitudinal study confirmed that the half-life of caffeine is prolonged during the neonatal period (97.6 + 32 hours and for as many as 38 weeks' gestation in several very premature babies).
63. Would discontinue caffeine - allow 7 days for caffeine to be eliminated then need to observe for 7 days to document a 7 day apnea free interval. I have been unable to find ANY supportive data. Most babies go home with a monitor for this reason.
64. we do not have monitors enough to send babies home with. We have not seen any problem with these practice
65. there is a study done several years ago on how long an infant should be monitored for post Caffeine discontinuation...I can't remember the author and I have read the article...not a huge sample size but a well done study...that is what we have based our practice on. By the way, we have sent home about 2 babies in the past 12 years requiring a monitor at home..
66. All of the physicians in our practice rarely if ever obtain caffeine levels anymore....
67. Try to stop caffeine at 32 weeks / apnea free for 7 days. Sometimes get caught with a baby off caffeine for a few days and ready to go home. Will sometimes send them on monitor for 2-4 weeks to expedite the discharge.
68. I wait exactly 7 days
69. thank you for this opportunity to participate in this needed survey
70. If we have any doubt, discharge home with a monitor
71. In our hospital, we usually discontinue caffeine after a baby has been caffeine free several days, then monitor at least five days prior to discharge for any apnea. I am curious to know what groups consider high levels.
72. I think that each individual patient is different. There have been babies that have been sent home on caffeine because of their inabilities to become apnea free without it in the designated time period that our unit has set as a requirement which is usually 7-10 days. All of these infants will go home on monitors.
73. We discontinue caffeine and wait about 5 days at which time we feel it to be sub-therapeutic. At this point we still observe for an additional 5 consecutive days without a/b's. We do not feel it is best for our patients to go home on a monitor and set the parents up with that responsibility. I am not aware of any data to support this practice, but I work in 2 level III units and it is the practice in both.
74. We usually try to discontinue caffeine several weeks before any possible discharge, stopping when there has been no apnea requiring stimulation for seven days. We don't restart caffeine unless recurrent apnea is severe. We keep the baby until apnea free for seven days, residual caffeine levels are rarely an issue, I think we might have waited an extra three days on the rare occasion when it was possibly going to be an issue.
75. None that specifies 5 days
76. We routinely do pneumograms instead of waiting for an extended length of time to be spell free, if the infant appears clinically ready for discharge. Of course if you have kust stooped caffeine, you would want to be sure it is subtheraputic.
77. We routinely discontinue caffeine at around 34-35 weeks usually regardless of apnea & bradycardia. Our unit policy is not to discharge prior to 35 weeks adjusted age even without A&B's. We almost never discharge preemie patients on an apnea monitor just for A's & B's
78. i accidentally answered # 3&4 (disregard).
79. no comments
80. Based on the half life of caffeine of 3-4 days. We usually will discharge at 7 days off of caffeine without monitor as long as no break thru apnea/bradycardia.
81. Why would a 35 weeker still be on caffeine? In my practice an infant who is 35 weeks and is still having apnea the etiology is not central in origin and would not be responsive to caffeine.
82. My answer in #5 would really be 5-10 days depending on which neonatologist is the boss that day.
83. We use a 14 count down when d/c'ing caffeine. As it takes 96 hours to reach a sub-therapeutic level, this is 4 days of the count. The last 10 days are the "event free" portion of the count.
84. At Advocate Lutheran General, at 32-34 wks, we will attempt to discontinue caffeine if 5 days or more spell free, or have events that are mild and infrequent (1 mild event per day) If on caffeine, patients all go home on monitors. Will do event recordings if still spelling on caffeine and otherwise ready for discharge. Or if 8 days spell free and on caffeine and ready for discharge, will go home with a monitor.
85. We would not wait until 35 wk to d/c caffeine. If caffeine is to be d/c'ed we do it at 34 wk, wait a week and then do a 48 h apnea trend monitor. If it is normal we discharge the baby, if abnormal goes home on a monitor. If I have a baby at 35 wks still on caffeine, he is committed to a home monitor. You are right, there is damn little science out there, but that's what we do....
86. 10 days total, 5 days to eliminate caffeine from the infant's system and then 5 days more to monitor for apnea "off caffeine"
87. All infants in our developmental nursery are placed on memory cardio-respiratory monitors with built-in oximetry. If nursing records events during the 5-7 days prior to anticipated discharge, we can download the monitor and review the waveforms to determine if the events recorded at the bedside were true events. This prevents delay in discharge due to false interpretation of alarms which could also result in the ordering of a home monitor(when one is truly not indicated). Reference PREDISCHARGE MONITORING OF PRETERM INFANTS Pediatric Pulmonology 27:113-116 (1999)
88. Once Caffeine is discontinued, we wait 7 days for it to get out of the baby's system (based upon the half life of the drug) and then begin a 7 day apnea free countdown before discharge home. We routinely make an attempt to discontinue the caffeine at 33 wks CGA, so hopefully don't get into the scenario described
89. If the baby is symptomatic the dose is increased to usually maximum of 4.5 mg/kg/day, ( caffeine base) Usually not higher since it may cause GER. We do not routinely send a baby home on caffeine. we will try to wean the baby off after 34 weeks gestation, so they are off the medication well before discharge. They all have car seat testing prior to D/C home. We will keep them in the hospital until that time. Babies are not routinely sent home on apnea blankets.
90. I rarely check levels. Once this child was event free, I would stop the caffeine and wait 5-7 days for the levels to fall. After 5-7 MORE event-free days, I'd be comfortable discharging.
91. there is none
92. I do not think I have ever had a family not want to take a preemie home on a monitor who was on caffeine but currently apnea free.
93. Elimination kinetics of caffeine at various PCA well documented, which is the basis of some of our decisions about dose free duration.
94. I think Alan Spitzer had an abstract on this. Wally

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